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Volume 13, Number 2

August 2004

 

 

 


Note from the Editor

 

The Glaucoma Service Foundation’s motto, appearing at the bottom of the first page of Searchlight on Glaucoma, reads “Meeting the Challenge of Glaucoma Through Education and Research.” Glaucoma patients enjoy safer and more effective methods of diagnosis and treatment of glaucoma today because of the research done over the years, especially the last decade. The allure of possibly finding a “cure” is irresistible to both researchers and those who support that research. Indeed, the importance of research cannot be overestimated.


Yet, because research is so much in the spotlight, there is a danger that the crucial role education plays in decreasing the number of individuals who go blind from glaucoma may remain under-appreciated and under-supported. With this in mind, for this issue I asked Dr. George Spaeth to comment about the education of glaucoma patients and Dr. Richard Wilson to answer questions about educating the general public about glaucoma.


Ken Parker, PhD

 

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Teaching and Learning About Self-Care

George Spaeth, MD

 

The more people know about their health the better. For example, if patients with glaucoma do not clearly understand why it is crucial to their health to take eye drops as prescribed, they may fail to do so, allowing their glaucoma to progress. Or, if they do not understand the side effects associated with drops, they may unnecessarily suffer from problems caused by the drops, when other drops just as effective but without the unwanted side effects could be used.


Educating glaucoma patients about these two points might seem simple. But if it truly were, there undoubtedly would be fewer complaints from doctors that their patients were not being “compliant,” and from patients that their doctors “didn’t tell me about” possibleside effects of a prescribed glaucoma medication.

 

As with any communication, patient education is a two-way street. It can be easy if the doctor is eager and has the time to explain what her examination of the patient has revealed and what she believes should be done — and the patient is enthusiastic to learn more by asking the doctor questions and seeking further information from books, pamphlets, and the internet.


Alas, however, this scenario is rare in the real world. The doctor often has little time or energy to provide details of what is, especially in the case of glaucoma, a very complex matter. It is easier and more efficient to take a paternalistic stance, without troubling to try to figure out how best to provide essential details to this unique person about her unique situation. And the patient often is all too willing to turn over responsibility for her health to the doctor without trying to really understand what the doctor is trying to communicate and what it means to her. It is just easier that way for both doctor and patient. Easier but not likely to result in a healthy patient.

 

 

Photo of doctors discussing research projects.

 

 

Glaucoma Service staff member Dr. L. Jay Katz (left) discusses his research projects with Dr. William Steinmann, Director of the Glaucoma Research Center. Most of the doctors on the Glaucoma Service not only see patients and perform surgery, but also teach and serve as principal investigators on a variety of glaucoma research projects.

 

Photo by Ken Parker, PhD

 

 

 


The Cornerstone of Patient Education
This all-too-typical yet unsatisfactory relationship between doctor and patient results, I believe, from the failure of both the physician and patient to recognize that the patient is ultimately responsible for his own health. From this perspective, it becomes the doctor’s responsibility, first and foremost, to help the patient learn how to take care of himself. Indeed, the original meaning of the word “doctor” is “teacher.”

Knowledge confers power. Knowing how to take care of one’s self empowers one to take care of oneself. Knowing about disease and how to avoid it helps make it possible to avoid disease. Who we are, what we become, how healthy or how sick we are, all these thing are the consequence of the inter-working of “nature,” “nurture,” “luck,” and “destiny.” By “nature” I mean our basic biology, which relates to our basic genetic make-up. “Nurture” can be divided into two different categories, external nurture and internal nurture. External nurture includes all those things that happen to us that we cannot control, such as the nature of the family into which we are born, our communities, our socioeconomic status, events such as war, famine, and plague, and the healthcare system of which we are a part. By internal nurture I basically mean lifestyle — everything over which we have a reasonable amount of control, and, to some extent, that includes our health care. Finally, it seems that “luck” or “destiny” also play a role in our lives, though just how or why has been debated passionately for thousands of years.


What is clear, however, is that of all these factors the only one over which we have any control is our lifestyle, the accumulation of the choices we make. That includes, for patients, the physicians we see and how we choose to follow or ignore the advice of those physicians. For doctors, as teachers, it includes not only learning about the particular manifestation of disease in an individual patient, but also choosing to be sensitive to the character of each unique patient so that they can begin to teach individual patients how to care for themselves. That includes, for patients, the physicians we see and how we choose to follow or ignore the advice of those physicians. For doctors, as teachers, it includes not only learning about the particular manifestation of disease in an individual patient, but also choosing to be sensitive to the character of each unique patient so that they can begin to teach individual patients how to care for themselves.


Hearing What We Want to Hear


A common problem in patient education is that both doctors and patients tend to hear what they want to hear. The patient may tell the doctor that she’s experiencing what she thinks might be the side effects of her glaucoma medication. But because the doctor is pleased that the drops are doing a great job of lowering the patient’s pressure, he may minimize the patient’s complaint and not take it as seriously as he should.


The doctor may stress the importance of taking medications exactly as prescribed. The patient, however, finding it difficult to take two or three different medications a different number of times each day, may begin to believe the doctor was overstating the necessity of following this regimen exactly. He may begin skipping some doses, thinking it’s not so bad.


All of us to some extent use what we hear or read to reinforce our own habits and beliefs, rather than using that information as a way to evaluate realistically our beliefs and habits. It is often difficult to admit to ourselves that the way we act and what we believe may be “wrong,” that is, in this regard not conducive to patients’ effectively caring for themselves or to doctors’ helping their patients be healthy. In order to change one’s beliefs one first has to admit at least a certain level of ignorance, and one must have a sincere interest in filling in the gap or correcting something one thought one knew to be correct. On the other hand, once we believe we have considered all the issues clearly, it is important to have enough confidence that our beliefs and assumptions and habits are appropriate that we are able to act on them.

 

“A common problem in patient education is that both doctors and patients tend to hear what they want to hear.”


The False Promise of “Health Education”


One might think that, for patients, developing that confidence has been made easier these days by the wide availability of “health information.” We hear and see commentaries on health-related matters constantly. We tend to forget that most “health education” is based on a desire to sell products. We are told that omega-3 fish oil is good for us, but we may fail to note that the advice comes from a company that sells omega-3 fish oil. The pharmaceutical companies are frequently singled out as offenders in this regard, but the concern applies to all of those who stand to benefit from a product or a service, and that includes doctors. Virtually every advertisement placed by a physician has as its intent increasing the physician’s revenues. True patient education is rarely the real purpose. By contrast, the doctor who is focused on genuine patient education will provide the best information she has and help patients learn how to evaluate all health information critically, so they can stand to benefit from it rather than be exploited by it.


Some Thoughts for Glaucoma Patients


Here are a few specific thoughts that might be of help to people who have glaucoma who want to take care of themselves as well as they can:


• Glaucoma comes in many forms, styles, and intensities. The best care is the care that is appropriately customized. Patients should not compare the care they are getting with that given to others. What
they need to know is that the care they are getting is the right care for them. For example, some people with early glaucoma need to have surgery within a few hours, whereas other people with early glaucoma need no treatment at all. That is, it is not that their glaucoma is early that is the critical point, but rather what is going to happen to them if they do not have treatment. The right questions to ask the doctor
then is not “What is my intraocular pressure?” but “How am I doing?”


• The primary angle-closure glaucomas are strongly familial. If you have an angleclosure glaucoma and you care for the other members of your family, you want to make sure that they are checked by somebody who is competent to diagnose angle-closure glaucoma.


• The results of a particular type of diagnostic test, such as a visual field, are only as valuable as the skill of the person interpreting the results. For example, even though there is no abnormality found in the visual field, a person can be getting worse, and even though a visual field can have apparently gotten a lot worse, the person may not be getting worse.


• The side effects of eye drops can be insidious and extremely serious. These side effects can be limited by decreasing the amount of drug that gets into the blood stream, and one way to achieve that is to push a tissue into the little pocket between the nose and the eye right after the drops are used, so the drop does not run down into the nose and get absorbed.


The side effects of drops include fatigue, dry mouth, backache, slow heartbeat, fast heartbeat, low blood pressure, elevated blood pressure, loss of sexual desire, and diarrhea.


• Only five percent of those who have intraocular pressure above normal limits will ever develop glaucoma damage, even if they are never treated.


• Those who have had successful glaucoma surgery in the past are at risk for developing infections inside their eyes, and, if they develop “pink eye,” they need to let their ophthalmologist know immediately.


• Cortisone products in any form — skin creams, nasal spray, pills, eye drops — can make the intraocular pressure go up in susceptible individuals.


• Aging is not an adequate explanation for a decrease in vision.

 

• Patients who bring lists with them that describe what has happened to them since the last visit, what is troubling them about their eyes, and questions that they want answered are likely to preserve their vision better than those who do not bring such lists.


• Those who are honest with their physicians and articulate in explaining their symptoms and concerns get better care than those who are not honest and articulate.


• Those who really learn to listen to their own bodies give themselves an increased chance to live longer, be healthier, and be happier.


• A good habit is to make sure that your physician learns something new and important about you at every visit, and that you learn something new and important about yourself and your doctor at every visit. Doing your part to expand the mutual learning taking place at each visit is one of the most important things you can do to take care of yourself, to preserve and enhance your health.


Knowledge is power, and that includes self knowledge. Those who know the most and also know how to utilize the information positively are those who are most likely to be truly healthy.

Dr. Spaeth and Dr. Lopes

 

 

 

 

Research Fellow Dr. João Lopes (left), from the University of São Paulo, Brazil, works with Dr. Spaeth. Dr. Lopes brings to his work at Wills a strong background in glaucoma research, especially in projects concerning quality of life in glaucoma patients and new imaging technologies. He was an active participant in the Blindness Prevention League at his university in Brazil.

 

 

Photo by Ken Parker, PhD

 

 

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Finding the Right Treatment

 

On Wednesday, March 3, 2004, Dr. Elliot Werner, glaucoma specialist at Wills, discussed “Finding the Right Treatment” with patients on the Foundation’s website chat room (www.willsglaucoma.org).


P: Dr. Werner, is it true that no two glaucoma patients are alike?


Dr. Elliot Werner: Not only are no two patients alike, but even the same patient is different at different times.


Moderator: So finding the right treatment can sometimes be difficult?


Dr. Elliot Werner: The “right treatment” is the one that preserves the patient’s vision as long as he or she lives. Unfortunately, it’s not easy to determine that in advance.


P: Does age play a role in determining a patient’s treatment?


Dr. Elliot Werner: Age is important in deciding how aggressively to treat. A very old patient who is likely to die before going blind is a very different treatment problem than a younger patient who has many years of potential lifespan.


P: Are drops usually the first course of action?


Dr. Elliot Werner: In North America, most doctors still use drops as first-line treatment for most chronic glaucomas, although more of us are moving on to laser trabeculoplasty much earlier now in open-angle glaucoma.


P: Is there a risk for young patients that using eye drops for a long time will damage the eye, which would make surgery more difficult in later years?


Dr. Elliot Werner: There is some evidence that the long-term use of drops causes inflammation of the conjunctiva, which reduces the chance of success of filtering surgery (trabeculectomy). I still believe, however, that the risk of surgery is greater than the risk of drops, if the glaucoma can be controlled with one or two medications.


P: When would you recommend using laser first, instead of going directly to a trabeculectomy?


Dr. Elliot Werner: I now offer the patient the option of laser or drops as first-line treatment. I try to explain the advantages and drawbacks of each and let the patient decide. In my experience, about 80% of patients opt to try drops first. People still seem to fear procedures more than medicines.


P: At what point is treatment indicated?


Dr. Elliot Werner: Treatment is indicated in any patient who has evidence of optic nerve damage or a high risk of developing future damage.


P: If laser surgery didn’t work and the patient didn’t want to use eye drops, would you advise cutting surgery? Would it be a bad idea to go directly to a trabeculectomy?


Dr. Elliot Werner: If the patient truly had progressive glaucoma, I would offer the patient filtering surgery. If the patient rejected that, I would advise him or her of a significant risk of irreversible blindness. But we have to respect each person’s autonomy.


P: Do you have suggestions for finding the right treatment?


Dr. Elliot Werner: Get your visual field and optic nerves examined at frequent intervals, and ask the doctor to compare the results with previous tests to be sure you are stable. If there are signs of deterioration, the treatment should be augmented.

 

P: Can someone who has an intraocular pressure of around 14 mm Hg get glaucoma? If so, why?


Dr. Elliot Werner: Yes. That is normal-tension glaucoma (NTG). “WHY?” All of us glaucoma docs scream that question to the heavens daily.


P: What is the best way to treat NTG? Will it make my father’s vision get worse fast — within several years?


Dr. Elliot Werner: A large NTG study was recently completed. About half of the NTG patients could be adequately treated with medications. The rest required surgery, so there is no best way to treat. It depends on the individual patient’s response to the different treatments we have available.


P: Isn’t it true that you can’t tell about progression just because a visual field printout looks“darker”? Couldn’t that just be the quality of the printout? My doctor says the only really important things are the numbers (on the printout). The graphic just points to where to look.


Dr. Elliot Werner: Determining progression from a visual field test is notoriously difficult. A lot of active research is trying to develop computer programs that will do that. It usually requires graphing and statistical analysis of the numbers. You are right: just the area of darkness is not a reliable indicator.

 

P: Somewhere in your “Chat Highlight” archives I noticed one of your colleagues advised weight loss. What does weight have to do ith glaucoma?


Dr. Elliot Werner: There is no direct relationship between weight and glaucoma that has been shown, but obesity is often associated with a variety of circulatory and other health problems, such as diabetes and high blood pressure that can make treating glaucoma more difficult. P: It must be frustrating for you (and other doctors) when a patient does not seem to be responding to treatment and it becomes ifficult to find the “right” treatment.


Dr. Elliot Werner: Yes, it’s the most frustrating thing in the world, especially since filtering surgery has at best about an 80% success rate. That means there are a significant number of patients who do not respond to any treatment. It’s horrible. Sleepless nights over that one.

 

P: Since the treatment protocol for most glaucoma doctors is about the same, would you say that the patient-doctor relationship is the single most important factor in treatment? Has anything changed in the training of specialists to close the gap of glaucoma as a disease versus glaucoma as it affects the patient as a person? I mean in treatment of the whole person? Dr. Elliot Werner: That’s a tough one. The problem you define is really a cultural one. Most glaucoma docs are oriented to saving vision, not, unfortunately, to making people feel better.

 

Kevin Warrian at work.

Medical student Kevin Warrian works on a study among glaucoma patients of the effect of a person’s personality on his/her selfreported quality of life. Mr. Warrian is a firstyear medical student at the University of Manitoba who plans to use his participation in this clinical science research project to fulfill the research requirement for obtaining a Bachelor of Science degree (B.Sc.Med.) in Ophthalmology. He plans to be in residence at Wills Eye Hospital for the rest of the summer and next summer to carry out this project.

 

Photo by Ken Parker, PhD

 

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Saving People from Unnecessary Blindness from Glaucoma:

An Interview with Dr. Richard Wilson

 

 

Ken Parker: As you are well aware, a report giving the most recent figures regarding the prevalence of open-angle glaucoma among adults in the United States* concludes that: “Owing to the rapidly aging population, the number of persons with open-angle glaucoma will increase by 50%, from 2.22 million today to 3.36 million in 2020.” Furthermore, the report recalls that “studies consistently find that about half of those with glaucoma are unaware they have the disease.” That seems to mean that, because vision loss from glaucoma usually can be minimized if treated early, as many as one million individuals are in danger of losing sight unnecessarily from glaucoma today, and that if the situation remains the same, 1.5 million will be in 2020.

 

“Owing to the rapidly aging population, the number of persons with open-angle glaucoma will increase by 50%, from 2.22 million today to 3.36 million in 2020.”

 

 

Why are so many people unaware that they have glaucoma?


Dr. Richard Wilson: Unfortunately, the most common variety of glaucoma, primary open-angle glaucoma, has no symptoms until the late stages of the disease. Individuals usually know little about the disease. Those who have some knowledge may feel if they can see their hands off to the side of their face, they cannot have glaucoma. Unless people are alerted by a family history of glaucoma and seek regular eye examinations, or the need for glasses, an eye injury, or an infection brings them to the eye doctor, the glaucoma they may have usually goes unnoticed until the majority of the optic nerve fibers have already been lost.


Ken Parker: What are the obstacles that make it difficult to find these people?


Dr. Richard Wilson: Many of those at highest risk — the elderly, African Americans, older Hispanics and those with a family history of glaucoma — do not have regular eye examinations. Even with eye exams, the early stages of the disease are difficult to diagnose unless there is an elevated intraocular pressure. When screening for glaucoma, as many as half of the individuals with definite glaucoma will have intraocular pressure readings in the normal range on that first exam. Early diagnosis often requires a detailed examination of the optic nerves, a skill in which not all eye doctors are skilled.


Ken Parker: How might these obstacles be overcome?


Dr. Richard Wilson: Education about the risks of glaucoma, the nature of the disease, and the absolute necessity of periodic eye examinations are the most important measures we can take. Screening the general population for glaucoma is a worthwhile educational tool, but concentrating on screening the people who I mentioned before are most at risk, those with a family history of glaucoma, the elderly, African Americans, and older Hispanics, has the most potential for actually reducing blindness from glaucoma. In addition, we need to develop more sensitive testing that will correctly identify individuals with early glaucoma but weed out those with suspicious optic nerves that in fact are normal. New visual field tests like the Frequency Doubling Technology perimeter and the Short Wavelength Automated Perimeter are a strong step in that direction.


Ken Parker: What, once we find these people, are the obstacles standing in the way of getting them the treatment that could save their sight?


Dr. Richard Wilson: As I mentioned before, there is a lack of understanding about the serious nature of their disease and the need for consistent, conscientious therapy if the disease process is to be halted. The lack of understanding coupled with a strong sense of denial results in only 41% of those who have been screened positively for possible glaucoma pursuing glaucoma care even when all the expenses involved in doing so are covered. For many, however, the costs of medication are high and constitute another barrier to consistent therapy.


Ken Parker: What is the Glaucoma Service Foundation doing about this problem? What more, given sufficient funding,
could the Foundation be doing?

 

Dr. Richard Wilson: By using the internet we have leveraged the Glaucoma Service Foundation’s newsletter, Searchlight on Glaucoma, and its monthly inhouse support group meetings and now send the Searchlight to 1300 e-mail subscribers, and archive it on our website (www.willsglaucoma.org). Also, we hold a physician-led patient support chatroom every Wednesday night and a patient-led chat support group at least one other time each week. An average of over 20 chatters join us each week from around the world, with typically two new chatters a week. People have connected from, among other places, Canada, Korea, Brazil, the Virgin Islands, the UK, Germany, Portugal, and New Zealand. The chatroom has made it possible to personalize the Foundation’s educational mission to an unprecedented degree. From the numerous folks who have taken the time to write us in detail about how we have helped them, we know that we have undoubtedly helped a great many people across the globe. And thanks to the superb ability and effort of volunteer Norma Devine, summaries of all these chats, “chat highlights,” on virtually every topic relevant to glaucoma are readily available to site visitors and easily searchable. Around 800 people visit our site everyday, transferring about 64 MB of material per day from one of the most extensive databases for glaucoma patients in the world.

 

“Only 41% of those who have been screened positively for possible glaucoma pursue glaucoma care even when all the expenses involved in doing so are covered.”


The internet has also enabled the Foundation to develop a virtual glaucoma research group that stretches from Philadelphia to Hawaii and around the world. With increasingly sophisticated software, we should all be able to work together with our widely dispersed ex-residents and ex-fellows in a concerted attempt to solve some of the serious problems concerning glaucoma that still plague us. Among other things, the use of the internet allows us to access patients with just-diagnosed and early glaucoma for studies. As you can imagine, it is difficult to find these patients in a tertiary medical center such as ours. The information compiled from studies is analyzed at a central computer server as the study progresses.


We have been conducting screenings over the last four years among high-risk groups in the inner city. This is done for both educational and research purposes. We are trying to determine the simplest, most effective method for screening and the means to motivate individuals identified as having glaucoma to enter therapy. One approach is to involve the individual’s primary physician in the diagnosis and follow-up. Our next goal is to develop methods of using telemedicine to screen high-risk groups remotely, that is, having technicians do the testing and physicians interpret the results after they have been transferred back to Wills over the internet. Methods to eliminate angle closure glaucoma in the population, enhance the effectiveness of laser and cutting surgery, investigate which medications work best in which people, and how the disease mentally and emotionally affects those who suffer from it, as well as the genetic underpinings of the disease are all under investigation with support from the Glaucoma Service Foundation. Clearly, additional funding will increase the scope and pace of our efforts.

Dr. Wilson

 

 

Dr. Richard Wilson (right) speaks with Foundation Board members Tom Henderer (left) and Hy Lovitz at a retreat for Board members held in the Wills Eye Hospital auditorium on June 12th.

 

 

Photo by Ken Parker, PhD

 

 

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New Members Strengthen Foundation Board

 

Joseph C. WatsonJoseph C. Watson
Mr. Watson is a Senior Vice President-Investments and Wealth Management Specialist in Legg Mason Wood Walker’s Marlton, New Jersey office. He has been in the investment industry since 1984, focusing on financial, retirement, and estate planning. Prior to joining Legg Mason, Mr. Watson was Senior Vice President-Investments for Butcher & Singer and Smith Barney. In addition to helping high-net-worth clients protect and preserve their wealth, he advises clients on issues such as reducing estate taxes and charitable giving.


“It is both a pleasure and an honor to serve on the Foundation’s Board. As a new Board member I hope to make a contribution to the Foundation’s work to promote research and education about glaucoma. My personal interest lies in the fact that my wife is a patient of Dr. George Spaeth. We are very fortunate to have found such a competent and caring physician.”


Christopher UrbanChristopher Urban
Christopher Urban is Production Services Director and Partner at Tetra Strategic Communications, a full-service sales promotion, advertising, and website development agency serving national, international and regional clients, located in Elkins Park.

 

Mr. Urban provides Tetra with technical and creative expertise in digital production, internet marketing and website design. He has written and designed daily newspapers and advertising supplements, winning national and international awards for his work with “The Press of Atlantic City.” A former teacher and the winner of a national Duracell science grant for inventing the first illuminated sneaker technology, Mr. Urban explains advanced technological concepts and integrates them in strategic marketing projects. Educated at the Massachusetts Institute of Technology, he is currently president of the Macintosh Business Users Society of Greater Philadelphia.


“My father Alex, a brilliant and seasoned newsman, served on the Board for a number of years after meeting Drs. Katz and Spaeth. As I recall, he was treated at the onset of early stages of glaucoma. After he died suddenly this past winter, it was suggested to me that I might continue on his behalf. I enthusiastically look forward to assisting the Foundation in any way that I can, both professionally as a partner in an advertising and marketing agency, and personally as a tribute to my father.”

 

George StrimelGeorge Strimel
Mr. Strimel is General Manager of Radnor Studio 21, providing professional direction and training for this community cable operation. Prior to that he worked in a number of media positions, including ones in which he planned the new Dubai-based Pan-Arab terrestrial and satellite news and general broadcast and internet service, as well as others in which he worked in news development and marketing of internetbased news broadcast monitoring operations. In Philadelphia, as President of Lenfest Programming, he created the Suburban Cable News Channel and produced all regional and national programming. He was awarded a regional Emmy for his marketing campaign and received six other Emmy nominations for Mummer’s Parade productions. He is a member of the Board of Trustees as well as President of the Friends of the Radnor Memorial Library, Founding President of the Friends of the Central Branch of the Free Library of Philadelphia, and a past member of the Pennsylvania Public Television Network Commission. Mr. Strimel also served as Vice- President for Programming for WHYY Channel 12 and was Founding President and General Manager of WVIA public television, Scranton / Wilkes-Barre.


“I was diagnosed with glaucoma over 20 years ago. Thanks to the care I have received I have largely maintained my vision. I want to use the skills I have gained in 54 years of broadcasting to help the Foundation spread the word about the risk of glaucoma and the importance of early treatment to prevent loss of vision.”

 

 

Dr. Zeff LazingerDr. Zeff Lazinger
Dr. Lazinger has owned and operated the Lazinger Wellness Center, Empire Chiropractic Center, and Lazinger Family Associates, LLC, in Lakewood NJ since 1980. Currently licensed in NJ, FL, and PA, he was named “Chiropractor of the Year” in 1998 by the Chiropractic Elite Organization. In addition to service on the advisory board of three New Jersey banks, Dr. Lazinger has worked in a number of areas of community service, including prevention of drug and alcohol abuse. He was also past president of the Monmouth-Ocean Chiropractic Society, past president of the Freehold Township Fire Department, and past president of Solomon Schechter Academy. He is a charter member of the Statue of Liberty Foundation, World War II Memorial, a member of the President’s Freedom Corps, and the President’s Circle of the D-Day Museum. Among the awards Dr. Lazinger has received are: the Circle of Excellence Award for Community Service in 2000 from the Monmouth County Chamber of Commerce, the National Young Leadership award from United Jewish Appeal, and the Silver Card Award, presented by the N.J. State PBA for service to the police. He was voted Outstanding Young Man in America by the U.S. Jaycees.


“I believe in serving the community. Helping to prevent blindness is a most worthy cause, especially when early detection is so easy. If I can help raise funds to prevent just one person from becoming blind my mission would be complete.”

 

Photo by Ken Parker

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Foundation Mourns the Loss of Two Board Members:
Dr. Herman Goldstine and Mr. Alexander Urban

 

The Foundation is sad to report the passing this year of Board members Dr. Herman Goldstine and Mr. Alexander Urban. Both were glaucoma patients, Dr. Goldstine of Dr. Spaeth and Mr. Urban of Dr. Katz, and both brought to the Foundation the considerable wisdom gained in their own distinguished careers.

 

Dr. Herman Goldstine
Dr. Goldstine was the scientist in 1943 who persuaded the U.S. military to back the development of the first computer, ENIAC, built at the University of Pennsylvania’s Moore School. After leaving the military in 1946, he collaborated with John von Neumann at the Institute for Advanced Study in Princeton in designing the second generation of computers, EDVAC. IBM hired Dr. Goldstine in 1958, and within two years, the company dominated the computer business. Dr. Goldstine stayed with IBM for 26 years, serving as, among other things, director of research. In 1985 he was awarded the National Medal of Science for his work in the invention of the computer.


Dr. Goldstine joined the Foundation Board when, in his retirement, he was serving as executive officer of the American Philosophical Society. He put at the Foundation’s disposal the development officer of the Society, Mr. John Callahan, who established the Foundation’s Annual Fund in 1998, and later was hired by the Foundation as a development consultant through the generosity of Foundation Board member Mr. James Kim.


Commenting on Dr. Goldstine, Dr. Spaeth said: “One knew one was in the presence of an extraordinary human being when one was with Dr. Goldstine. He was obviously brilliant and thoughtful. But he was also amazingly gentle and genuinely humble. He also had a marvelous sense of humor. When one of our fellows asked Dr. Goldstine why he had never patented the computer, he answered that he was not sure that it would ever be of any value. Even after his Parkinson’s disease became severe he was able to find humor and even delight in situations where most would have seen only problems. I recall a dinner party given by Dr. Goldstine and his wife Ellen in their apartment on Rittenhouse Square. Of course the conversation was learned and marvelous. But the defining characteristic of the evening was the laughter — goodhearted, enthusiastic, and delightful laughter.”


“Dr. Goldstine always had time to discuss research and had a deep interest in the activities of the Glaucoma Service Foundation. In fact, it was with the help of John Callahan who came to us through Dr. Goldstine that transformed the Foundation into a thriving enterprise. Dr. Goldstine was one of those rare people who make the world better in two different ways: first, through their brilliant contributions and second, through their delightful personalities.”

 

Dr. Herman Goldstine

Dr. Herman Goldstine (Courtesy Annie Wescott, American Philosophical Society)

 

 

Mr. Alexander Urban
Mr. Urban was born in Vienna, raised in Eastern Poland, and later settled in Warsaw. Surviving the Nazi occupation and Stalin’s communist occupation of Poland, Mr. Urban emigrated to Canada, where he trained as a concert pianist and vocalist. Working at the New York Times and the Voice of America in the 1950s, he received in 1959 the New York Times Publisher’s Award for exceptional news coverage. Following stints with CBS, NBC, and ABC, he started in 1965 as a reporter and editor for Women’s Wear Daily. He moved in 1970 to Vineland, New Jersey, to serve as production editor of the publication. In 1993 he retired from Women’s Wear Daily, but returned to work as a copy editor for the Press of Atlantic City two years later. Mr. Urban joined the Foundation Board in 1992, contributing his journalistic skills to the development of Searchlight on Glaucoma and pieces on glaucoma submitted to national publications. He also made important recommendations concerning the financial structure of the Foundation.


Commenting on Mr. Urban, Dr. Spaeth said: “Alex Urban brought to his association with the Glaucoma Service Foundation an enthusiastic, bighearted energy that was both infectious and helpful. He motivated other members of the Board and the staff. He always had positive, original suggestions. Mr. Urban was an individual who clearly believed that problems could be solved if you approached them with enough energy, enthusiasm, and good sense. The Board meetings always went better when Mr. Urban was present. Though we miss Mr. Urban’s largerthan- life presence, we are fortunate and happy to have his son, Chris, presently on the Board. Chris’s style is somewhat different, but no less original and no less committed.”

 

Mr. Alexander Urban

Mr. Alexander Urban (Courtesy Christopher Urban)

 

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Your Annual Fund Support is Vital

 

The Glaucoma Service Foundation helps support many glaucoma-related programs:


• Internet website —
www.willsglaucoma.org
An average of 800 persons — from the Delaware Valley and around the world — visit daily for the most comprehensive information on glaucoma available anywhere. Weekly “chat sessions” with a Wills glaucoma specialist provide a highly personal way to learn about all facets of the diagnosis and treatment of all types of glaucoma.


• Searchlight on Glaucoma reaches over 18,000 individuals (plus 1,900 individuals to whom it is e-mailed, and all those who read the archived issues on our website) three times a year with vital, authoritative information about glaucoma and the Glaucoma Service at Wills Eye Hospital.

 

• Education of three clinical fellows each year — The best learn from the best here on the Glaucoma Service, disseminating the wisdom of our specialists around the world.


• Patient Support Group Meetings — Glaucoma patients learn directly about glaucoma from Wills glaucoma specialists in monthly
meetings, which also provide patients an opportunity to meet and discuss their experiences with each other. Audiotapes of the meetings are provided free of charge.


• Screening Program — To help decrease loss of vision from glaucoma, Glaucoma Service doctors screen individuals in senior centers and churches in order to find those who may have glaucoma but are unaware of it and help them find appropriate treatment.


• Research — The Foundation hired a research director and helped establish the Glaucoma Research Center at Wills Eye Hospital. We continue to help fund cuttingedge research through the Glaucoma Research Center and the Laboratory for Molecular Ophthalmology at Wills Eye Hospital.


All of these programs are made possible through the generous support of individuals, foundations, and corporations through our Annual Fund and program-restricted gifts.


With foundation and corporate giving down, the need for funds to support these programs is great. Your past generosity has been essential in creating them. Your continued generosity will help ensure that they are maintained and enhanced.

 

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Named Giving Opportunities

 

We are pleased to announce named giving opportunities available to those who wish to support a specific Foundation program with a substantial gift. For example, you may wish to be named as:


• a sponsor of the Searchlight for a gift of $5,000, $10,000, $15,000, or $20,000


• a sponsor of the Foundation website for a gift of $3,000, $5,000, or $8,000


Another way to help support the Foundation’s work is to memorialize a loved one or honor a friend or relative with a gift to the Foundation. Also, we hope you will keep the Foundation in mind in your estate planning.


For more information on how you can help, please contact the Foundation office at 215-928-3283.

 

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Patient Support Group Meetings

 

Meetings are from 1:30 to 3:00 PM on Sundays in the 8th floor auditorium of the “new” Wills Eye Hospital, southeast corner of 9th and Walnut Streets, with the entrance on Walnut Street, near 9th Street.


September 26th —
Dr. Jeffrey Henderer
A Refresher Course in Glaucoma


For information on future, as yet unscheduled, meetings please call the Foundation office (215- 928-3190) and ask to be put on the support group mailing list.

 

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ACADEMY TO HONOR FOUNDATION WEBSITE CHAT SUPPORT GROUP

 

The chat support group established on the Foundation website, www.willsglaucoma.org, in 1998 under the direction of Dr. Richard Wilson, will be recognized this October at the American Academy of Ophthalmology (AAO) Annual Meeting as “the premiere virtual glaucoma chat support group in the world.” Comments Vivian Werner, administrator of the website and patient of Dr. Wilson: “We are very honored by this recognition and look forward to helping people affected by glaucoma worldwide for many years to come.”

 

Chat Support Group
www.willsglaucoma.org


Wednesdays, 8:30–9:30 pm
hosted by a Wills glaucoma specialist


Mondays, 8:00–9:30 pm

Saturdays, 10:00-11:00 am
patient and family members only

 

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